The data controller for this project
Leeds City Council will be responsible for the data once it has been collected and passed over to the Public Health team as part of the project. The information will be collected via the third sector (LS14 Trust and Space 2) within a number of locations and organisations, and they will remain data controller for the information that they collect and hold.
The reasons we use your data
Leeds Public Health works to improve the health of local residents and help prevent serious health issues developing. High blood pressure or hypertension is often referred to as the ‘silent killer’ because it may present no obvious symptoms, however persistent high blood pressure significantly increases the risk of strokes and heart attacks. In the UK, around 50% of strokes and heart attacks are associated with high blood pressure.
In Seacroft, whilst the prevalence of diagnosed hypertension remains similar to the Leeds average, the prevalence of strokes and cardiovascular disease is higher than the city average. Moreover, the factors that increase people’s likelihood of hypertension, such as smoking and living with obesity are also of increased prevalence in area, suggesting that hypertension may be going unnoticed in the community.
This project aims to raise awareness and support the early identification of hypertension within the Seacroft community using an integrated model of care. For those who are identified as having a high blood pressure reading, the secondary aim of the project is to support people to manage and reduce their blood pressure by taking a person-centred approach, in which the individual is supported to engage with Primary Care and the wide range of activities on offer within the community which support living well.
Leeds City Council will process and pseudonymise the data that is collected about you. The pseudonymised and aggregated data will be used to evaluate the effectiveness of the project.
You do not have to have your blood pressure taken if you do not want to. If you want your blood pressure taken but do not want your information being collected as part of project, please let a member of staff know. If this is the case, then you will be counted as part of the tally, but no further details will be included in the project evaluation.
Why we collect your information
Personal data:
For the initial collection and sharing your data with third parties we will rely upon your explicit consent. This means you will be asked to consent to the collection of personal and special category information before your details are included in a specific collection. You can change your mind, 'withdraw your consent', at any time by informing the third sector staff who obtained your consent.
For the processing of personal data, GDPR Article 6(e) states processing is necessary for the performance of a task carried out in the public interest or in the exercise of official authority vested in the controller. Health and Social Care Act 2012 Part 1, Section 12 (2B) states that “Each local authority must take such steps as it considers appropriate for improving the health of the people in its area.” Contributing to this project is one of the ways we consider it appropriate.
Special category data:
For the processing of special category data, GDPR Article 9 (2)(j) states processing is necessary for archiving purposes in the public interest, scientific or historical research purposes or statistical purposes in accordance with Article 89(1) based on Domestic Law which shall be proportionate to the aim pursued, respect the essence of the right to data protection and provide for suitable and specific measures to safeguard the fundamental rights and the interests of the data subject.
The data we will process
The personal data which will be processed is:
- your name
- date of birth
- phone number
- your GP surgery
- age range (for example 39-44)
- gender
- the first 4 characters of your postcode (this will converted into geographical area and pseudonymised as part of our analysis).
The special category data which will be processed is:
- blood pressure level (for example, high, low or normal). This will ensure appropriate referral is made when you take your initial blood pressure reading
- if you are currently receiving treatment for hypertension
- ethnicity
- your feedback on whether you felt better informed about your blood pressure and your next steps
Who we can share your data with
Your pseudonymised information will be shared with Leeds City Council’s Public Health Team.
If you have a high blood pressure reading and you are registered with a GP surgery which is part of Seacroft Primary Care Network, your contact details will be shared with your GP Practice so that the Proactive Care team can contact you (with your consent).
Data retention and storage
Data will be retained for 18 months. The Public Health team will retain the full data set for the project’s duration, 12 months plus an additional 6 months after the project has ended to ensure accuracy of data while it is being analysed, anonymised, and reported.
Anonymised and aggregated data in the form of reports will be retained by The Public Health team for up to 6 years to inform future blood pressure and cardiovascular interventions.
How we store your personal information
The unredacted information will be stored on secure UK servers held by the Council for 12 months.
If you wish to know how the data will be stored and held by the third sector staff who are collecting this information, please ask them directly for their Privacy Notice.
Your data protection rights
Under the General Data Protection Regulation, you might have more rights about what happens with your data. As different rights apply in different situations each request will be assessed on a case by case basis. You have the right under the Data Protection Act 2018 (General Data Protection Regulation) to request a copy of your information and to know what it is used for and how it has been shared. This is called the right of subject access.
To request a copy of your personal data or ask questions about how it is used,
visit the privacy and data web page.
How to complain
If you are not satisfied with how your request has been dealt with, or if the information held about you is incorrect, you should contact Leeds City Council outlining your concerns. If you then wish to make a complaint, then please contact us using one of the methods below:
Information Management and Governance
PO Box 837
LS1 9PZ
You also have the right to complain to the Information Commissioner’s Office.
Automated decisions making
Your information will not be used to make automated decisions about you.
When your data gets sent to other countries
Your data will not be transferred outside of the UK. Leeds City Council and the third sector organisations we are working with will hold your data securely within the UK.
Changes to this notice
We keep our privacy notice under regular review. This privacy notice was last updated 20 June 2024.
